Indian healthcare NGO (Non-governmental organisation) promoting quality health care
 
 
  • Introduction
  • Objectives & Activities
  • Achievements
  • Case Study

Introduction
BOLEP is situated in the western part of the Orissa State and covers 5, 40,659 population (2001 census). Of which, 82% live in rural areas and 73% of families live below the poverty line. When BOLEP was launched in 1990, the PR rate for leprosy was 228/10,000 population.

Over the years, the project contributed to reduce the prevalence rate to 3/10,000 at the end of December, 2007. The activities were focused on disability management and supported government in the leprosy elimination programme. Comprehensive disability services, socio-economic rehabilitation of leprosy affected people, IEC and capacity building of different stakeholders improved the health and social life of the people with leprosy in the region.


Areas of Operations
1. Promotion of prevention of disabilities and rehabilitation activities.

2. Enhancing community participation and awareness in the community of their health needs (focus on 40 villages of 6 GPs).

TRU:

Referral Centre centered activities are aimed to augment the comprehensive care of disabled persons as well as management of reactions and neuritis. ) The services includes

physiotherapy and medication, ulcer care, provision of protective footwear made of micro-cellular rubber (MCR) to the leprosy patients and provision of other adaptive devices like crutches, splints etc.

The patients found fit for reconstructive surgeries are prepared in the hospital and referred to the designated referral centre for surgery. After surgery, the post operative care and management is done in the project hospital.

Table: PR/NCDR in the Subarnapur district form 1990 to 2007

YEAR

PR*

NCDR**

PR & NCDR /10,000 Population

1990

228

130

1991

270

124

1992

105

47

1993

67

47

1994

47

42

1995

43

35

1996

45

44

1997

35

33

1998

18

38

1999

17

27

2000

13

25

2001

16

27

2002

10

14

2003

9

15

2004

7

11

2005

3

5

2006

2

3

2007

3

5

 

 

 

 

 

 

 

 

 

 

 

*PR: Prevalence Rate
**NCDR: New Case Detection Rate

Goal

Leprosy Eradication Project (BOLEP)
   

Goal/Overall Objective:

  • Improved Health Status of People in Subarnapur District.

2. Project level achievements

In 2006 major focus of the project was field based as well as referral centre based leprosy disability management along with cross cutting activities like IEC and intensive community mobilization in 40 villages. Emphasis had been laid on integration among different stakeholders such as NGOs, PRIs, government welfare departments, Banks, Philanthropists for SER facilitation. The followings are detail achievements of the Project during 2006

The efforts of the project have drastically reduced the Prevalence rate from 228/10,000 to 1.85/10000 by the end of March’2007 . MB rate and the child case detection rate has been reduced, it is indicates that the source of infection of the disease is gradually reducing. Disability rate declined gradually because of early detection. Since inception to end of March’ 2007. 25,652 nos. of leprosy cases have been registered, out of them, 25,222 have been cured and released from treatment (RFT). 472 cases have been registered in our referral centre for betterment of the ulcer and reaction /post operative management, out of that 152 cases registered during this quarter. Till end March’2007 511 cases under gone RCS through the project and all of them regained physical status. 2,586 nos. of cases have been supported and followed up for preventing disability and worsening disabilities. 800 nos. of Grade-I and 1786 nos. of Grade-II cases .The project has been provided 11,467pairs of foot wears (G-I 5908 & G-II 5559) to clients.

Considering the need for comprehensive services to the people with leprosy, the project developed well equipped 30 bedded hospitals for complication and disability management along with laboratory, physiotherapy and Footwear Units. Then, Socio-economic rehabilitation of leprosy cured people was added. The project IEC was also developed with an innovative model IEC Van. 92 films conducted which covered 22883 population.42 group meetings, 22 school education 48 nos. of market exhibitions, 162 IPC with stake holders, 94 FGD in target villages done through IEC programe in different village level institution.25, 325 printed IEC material distributed to the peoples in villages and exhibitions.

The community mobilization process was initiated in the year with the skill development of project staff. In the process of 71 no. of village health committee (VHC) has been formed also facilitating the village sanitation drives, deformity care clinics and cultural programmes have been organized by the committee for which they raised contribution from different sources

Stigma was reduced to a great extent because of sensitization and IEC programmes of the Project. General health staff are now identifying and treating leprosy cases and managing the programme effectively through the capacity building and support activities of the project to General health staff after integration. Participation of community and civil societies in deformity care clinics was improved, for example; CBO members/Angan Wadi Workers guided 427 cases for self care, 537 cases were effectively guided by under family members and 680 cases became self reliant in self care.

Socio-economic rehabilitation:

111 clients are benefited from LEPRA revolving loan with out interest, 168 from other sources of LEPRA, 20779 persons benefited from govt and 92 are from philanthropist.

3.Human interest stories

Click here for CASE STUDY

4. Information about Partners/Donors supporting the Project

The project conducted a meeting with each block with all PRI members for facilitating the different schemes for needy clients. District collector also promised to issue housing for needy clients and suggest to link with BANK for developing linkage with income generating programme through SHGs. 59 no of Disability care clinic (DCC) has been organized by local clubs with help of village volunteers. Project has continued network and linkage effort with CBOs, PRIs and development authorities of the Government for the socio-economic rehabilitation of the leprosy cured people. The project now has been involved in all programs at the district level.

5. Coordination with Government


The project staff are regularly participating all sectors/Block/District level meetings with Govt. staff. Also attend at the time of case validation with DTST. Also link with village level government worker for bridging the gap with villagers and government planner. The project has been developing linkages in coordination with government health and welfare department for facilitating different schemes, till now 55 clients are benefited from welfare department. Recently the project has conducted district level meeting with all volunteers on the plan for 2007 and shared with district collector and chief district medical officer. The district administration has selected BOLEP as a significant partner in district malaria control programme.

 

Introduction


Case study- I
Ms. Menakshi Panda 19/F, D/o Mr.Tapan Kumar Panda, Rayaguru Pada, Sonepaur NAC. She is studying in +2 at Women’s College of Sonepur. She is living with her parents at Sonepur. Out of two one sister got married.
Her father is chemist and mother is house wife. In the year 2006 , month of January she noticed a small skin lesions over both fore arm and also lesions present on anterior aspect of both legs, at the same time she felt that is difficult to hold the pen and unable to write. She told her mother regarding her skin lesions and weakness of hand. Her mother took her to District Head Quarter Hospital. There they diagnosed as a case of leprosy and started PB (adult) treatment. But they didn’t start steroids for her neuritis, she taking MDT regularly. After 3 months the Health Worker (Male) of Sonepur NAC informed details of the case to our CHP. He assessed her and confirmed her neuritis and he referred to our Physio Department for better Physio therapy and treatment. Physio Therapist thoroughly examined the case and started Prednisolone and physiotherapy treatment and advised to get admission in the IP ward. But due to stigma (because she is unmarried) she was not willing to admit in the IP ward, but She told that, I will come for Physio therapy treatment regularly in allotted time as an outpatient. She used to come to the Department regularly in threat, sad face and also she cries very often while thinking herself. In mean while she stopped her studies, by not going to the College, though she has to be given examination. When starting the Steroid therapy, we convinced the District Nucleus Medical Officer, to change the clarification, from PB to MB as per her condition. She took the steroids correctly as per prescription, and did Physio therapy exercises well, during this period.
After three months, soon after completion of steroid therapy, one day she came to the department with smile and seems she was very happy. Then the Physio Therapist asked her, what happened? Today you are looking so different rather than before, you are so smiling? I never see before as you look today. Then she answered that now I am Ok, I can able to hold the pen and have no difficulty to write, I continuing my studies and going to college without any hesitation. She expressed herself happy, LEPRA Society saved my life by restored my Dignity, so I am ever grateful to LEPRA Society.
Case study-II
Mr. Gajendra Saraf is one of the Leprosy treated person of Kuliakani Village of Raxa G.P which belongs to Ullunda Block of Subarnapur District. In the year 1995, he was identified BOLEP by the door-to-door survey as a PB case with patches and foot drops on the left leg. Because of the existence of high level stigma in the village, his family was isolated. Nobody were supporting or accepting them in the village and he was facing many obstacles in daily living activities. However, he took MDT regularly and just after 6 months in the 1996, he was released from the treatment. BOLEP also supported for the correction of his Drop foot and the surgery was completed successfully.
Considering his socio-economic condition, Project supported him Rs.7, 000/- as loan from the LEPRA Revolving Fund in the year 2000. He opened a goldsmith shop with some specific machine which was not available in his locality. The shop moved on. Simultaneously BOLEP staffs were continuing awareness, individual as well as group discussion to drive out the stigma in the village. He was also counseled how to cope with the situation. Gajendra Passed Matriculation and attended intermediate examination.
Now Gajendra is 32years old. He married in the year 2004 and is blessed with a girl child. He is a skilled Gold smith and running the business very well and is the only earning person in the family. He has constructed own house in his village. He takes his health care properly. His wife also supports him in business and health care. He has cleared the entire loan amount to the Project before the due date. His socio-economic condition has been improved and now he lives happy life in the family and community.

 

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